Tourette Syndrome Association, Inc.

Founded in 1972 in Bayside New York, the national Tourette Syndrome Association is the only national voluntary non-profit membership organization in this field.  Our mission is to identify the cause of, find the cure for and control the effects of Tourette Syndrome.  We offer resources and referrals to help people and their families cope with the problems that occur with TS.  We raise public awareness and counter media stereotypes about TS.  Our membership includes individuals, families, relatives, and medical and allied professionals working in the field.

Program development, education and medical programs, government outreach, adherence to TSA’s mission, maximizing efforts, minimizing expenses, TeamTSA events, awareness month, publications, chapter relations, research grants, scientific and medical conferences, are ongoing efforts of TSA’s full-time professional staff. Volunteers of extraordinary dedication and professional merit serve on TSA’s Board of Directors, Medical Advisory Board(MAB), and Scientific Advisory Board (SAB).

Medical & Treatment/Science & Research – TSA  funds research that will ultimately find the cause of and cure for TS and, at the same time, lead to improved medications and treatments.  The goal for our research program is to support investigators from all areas of science who can contribute to the understanding of the genetics, pathogenesis, pathophysiology and the treatment of TS. Many of our publications and videos are directed at furthering the understanding and treatment of TS by the medical community.  TSA’s Medical Advisory Board has developed Practice Parameters for physicians in treating Tourette Syndrome.  In partnership with the CDC, TSA is conducting a series of Medical seminars around the U.S., and has developed medical education videos and materials on this website

• Education, Education Advocacy – TSA provides essential TS information to educators and families to optimize teaching and learning, and tries to end stigma and promote acceptance regarding TS in school settings. Through an ongoing partnership with the U.S. Centers for Disease and Control (CDC), TSA conducts seminars for Educators and Allied professionals to advance their understanding, and enable them to address and manage symptoms of Tourette Syndrome in the education environment. TSA’s Education Advocacy program give families and advocates the tools they need when pursuing the best program options and services for children. Our Bullying Prevention resources section gives vital information to parents and educators trying to understand and deal with Bullying.

• Resources for Adults, Parents, Youth – Online Newly Diagnosed materials including video with Dr. John Walkup; Education Advocacy; Anti-Bullying; Education webinars/audio&slideshow presentations. Adults with TS materials include many free articles, ‘Family Portraits’ of adults with TS, Self-Esteem video. Youth resources include free newsletter “That Darn Tic”, “Victories”, “Youth Ambassador” program.

• Newsletters, Publications & Videos – Our Quarterly Newsletter, our Children’s Newsletter “That Darn Tic”, and our on-line Young Adult Newsletter contain the latest updates of medical, scientific information and news of interest to all in the TS community. TSA develops and disseminates videos, publications, including a CD Educators’ Curriculum for families, individuals, and medical and allied professionals.