The Stevens Johnson Syndrome Foundation (Julie Foundation for allergic drug reactions) is a non-profit organization. The purpose of the foundation is to provide the public and medical communities with information on adverse allergic drug reactions. Our goal is to make the public aware of adverse reactions, so that a quick diagnosis may be made and the offending drug stopped as soon as possible. Allergic drug reactions are the fourth leading cause of death in the United States.
Adverse Drug Reactions may cause over 100,000 deaths among hospitalized patients each year. Less then 1% of all drug reactions are reported to the FDA. The public needs to know what to look for when taking any drug and seek medical attention immediately in the event of a reaction in order to prevent permanent damage. The SJS Foundation is also doing medical research into SJS/TEN
The Stevens Johnson Syndrome Support Group originated in May of 1995. The Group’s purpose is to provide emotional support for people with Stevens Johnson Syndrome and Toxic Epidermal Necrolysis.
The SJS Foundation was founded to be a resource to SJS victims and their families. Our mission is provide support services, and compile and distribute valuable information about SJS to the public and medical professionals regarding treatments and therapies that prove beneficial to SJS sufferers. We work to promote public awareness about the signs of SJS so that a quick diagnosis can be made and the offending drug stopped as soon as possible.